Cover of The Immortal Life of Henrietta Lacks by Rebecca Skloot - Business and Economics Book

From "The Immortal Life of Henrietta Lacks"

Author: Rebecca Skloot
Publisher: National Geographic Books
Year: 2010
Category: Science

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Chapter 34: The Medical Records ... 2001
Key Insight 1 from this chapter

The Emotional and Challenging Review of Medical Records

Key Insight

The session began with Deborah's determined and jittery approach to examining her mother's extensive medical records, which comprised over one hundred crumpled, folded, and torn pages. Despite the overwhelming volume and disarray, she insisted on reviewing them immediately, rejecting the suggestion to photocopy them first. Her initial reactions were highly volatile, fluctuating between outbursts of joy and panic, as she clutched a picture of her sister Elsie, while simultaneously pulling papers for reading and sorting.

Deborah's deep protectiveness of her mother's records became evident throughout the review. She saw them, along with a Bible, as the only tangible inheritance from her mother, especially in contrast to the widespread use of her mother's cells. This protectiveness manifested in erratic behavior, including hiding papers under a pillow, accusing the narrator of lying, and a physical confrontation stemming from suspicion about motives and loyalty. She revealed that a man named Cofield had previously tried to take these records, explaining her extreme anxiety about their safekeeping and her refusal to allow all of them to be copied or typed.

The emotional toll of the process was significant for Deborah, culminating in physical symptoms of anxiety. After the intense review, she exhibited restless behavior throughout the night, repeatedly knocking on the door with various excuses and displaying hives covering her face, neck, and back by morning. She confessed to being 'so anxious last night' that she could not sleep and compulsively painted her fingernails. This period underscored the profound personal and emotional weight these medical documents held for her, triggering both profound connection and immense distress.

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