Cover of The Immortal Life of Henrietta Lacks by Rebecca Skloot - Business and Economics Book

From "The Immortal Life of Henrietta Lacks"

Author: Rebecca Skloot
Publisher: National Geographic Books
Year: 2010
Category: Science

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Chapter 34: The Medical Records ... 2001
Key Insight 2 from this chapter

Revelations and Personal Reflections from Medical Documents

Key Insight

The review of Henrietta's medical records and related documents uncovered a diverse collection of items, including a land deed for Deborah's Clover property, bought with 2000 dollars from her father's asbestos settlement, a 1997 newspaper mug shot of Lawrence's son charged with 'ROBBERY w/DEADLY WEAPON', order forms for HeLa cells, church newsletters, and numerous copies of Henrietta's photograph. Significantly, the documents also included Deborah's personal notebook pages containing definitions of scientific and legal terms, alongside poems. These poems articulated her anger regarding cancer care disparities, stating that 'white and rich get it' while 'black poor people don't have the money to pay for it,' and expressed resentment over being 'used by taking our blood and lied to' without receiving any compensation from institutions like Johns Hopkins Hospital, despite their use of her mother's cells.

Specific medical entries yielded poignant discoveries. A record dated November 2, 1949, revealed Henrietta's checkup three days before Deborah's birth, noting her cervix was two centimeters dilated, signifying an impending delivery. Another entry from February 6, 1951, approximately a week after Henrietta's initial hospital visit for cervical cancer, detailed her feeling fine after waking from anesthesia post-biopsy. A particularly cherished item was Henrietta's signature on the consent form for radium treatment, from which the original HeLa sample was taken; this represented the only known piece of her mother's handwriting.

The review also brought forth emotionally charged information about Deborah's sister, Elsie. Examining Elsie's Crownsville picture prompted Deborah's distress over her sister's 'scared' expression, the implied 'choking herself,' and the 'white hands' visible in the image. Later, reading Elsie's autopsy report, Deborah reacted strongly to the diagnosis of 'idiocy,' initially interpreting it literally as 'foolish' or 'idiot.' Upon learning it was an outdated medical term for mental retardation or brain damage linked to hereditary syphilis, she became highly protective, explicitly requesting that a sensitive word from the report not be included in any future publication, demonstrating her deep concern for Elsie's memory.

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