Cover of The Immortal Life of Henrietta Lacks by Rebecca Skloot - Business and Economics Book

From "The Immortal Life of Henrietta Lacks"

Author: Rebecca Skloot
Publisher: National Geographic Books
Year: 2010
Category: Science

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Chapter 37: Nothing to Be Scared About ... 2001
Key Insight 1 from this chapter

Deborah's Health Crisis, Resilience, and Evolving Perspective on Education

Key Insight

Deborah's health was critical due to extremely high blood pressure and blood sugar, manifesting as confusion, panic, and incoherent speech. Her doctor, amazed she hadn't suffered a stroke or heart attack, warned of imminent risk and advised complete stress avoidance, leading to her stopping research trips. Despite her grave health, Deborah was determined to pursue education, believing that understanding science would alleviate her fear regarding her mother's and sister's stories. She enrolled in adult education classes, taking math and reading placement tests with the goal of reaching a tenth-grade level for college. She considered becoming a dental assistant but leaned towards radiation technologist to study cancer and assist patients receiving radiation treatment, like her mother.

As a conference honoring Henrietta approached, Deborah faced immense family stress. Her brothers, Lawrence and Zakariyya, frequently called, expressing anger about her public speaking and threatening to sue scientists, with Lawrence demanding collected records. Concurrently, her son Alfred faced trial for armed robbery and attempted murder, and a nephew was arrested for robbery. Despite declaring 'The Devil's been busy, girl,' and stating, 'I'm not gonna let nobody upset me right now,' the pressures were relentless. The conference was ultimately canceled due to the September 11, 2001, attacks, causing her depression. Shortly after, during a church service, Deborah suffered a stroke, losing movement in her left arm and experiencing facial sagging. Her 9-year-old grandson, Davon, heroically reacted by getting her to the car, starting it, and repeatedly slapping her to maintain consciousness until they reached a fire station, an act a fireman credited with saving her life.

Upon regaining consciousness, Deborah's immediate concern was taking her school tests. Doctors confirmed her left side was weak and arm movement impaired, but predicted a full recovery. She viewed the stroke as inevitable, stating it 'lifted my burden' and made her feel 'light,' 'better than since before I found out they took my mother cells.' Her doctor warned against a potentially worse second stroke, stressing the need for education on warning signs, blood pressure, and blood sugar control. This solidified Deborah's educational commitment; she swiftly enrolled in diabetes and stroke classes and planned a nutrition class. Her stroke also eased family tensions, with brothers calling daily and Zakariyya offering to visit. However, financial constraints, with her social security check barely covering living expenses, prevented her from affording classes and books. She conceived a disposable baby bottle invention but dropped the idea due to several thousand dollars in prototype costs. Ultimately, Deborah shifted her focus from her own education to ensuring her grandchildren and younger relatives received schooling, acknowledging, 'It's too late for Henrietta's children,' and declaring, 'This story ain't about us anymore. It's about the new Lacks children.'

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